{"id":197,"date":"2024-10-20T11:43:16","date_gmt":"2024-10-20T11:43:16","guid":{"rendered":"https:\/\/autinteger.be\/?page_id=197"},"modified":"2025-03-16T18:20:31","modified_gmt":"2025-03-16T18:20:31","slug":"participatory-autism-research","status":"publish","type":"page","link":"https:\/\/autinteger.be\/index.php\/participatory-autism-research\/","title":{"rendered":"Participatory autism research"},"content":{"rendered":"\n<div class=\"wp-block-cover alignwide\" style=\"min-height:207px;aspect-ratio:unset;\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim\" style=\"background-color:#575348\"><\/span><img loading=\"lazy\" decoding=\"async\" width=\"2048\" height=\"2560\" class=\"wp-block-cover__image-background wp-image-186\" alt=\"\" src=\"https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-scaled.jpg\" data-object-fit=\"cover\" srcset=\"https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-scaled.jpg 2048w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-240x300.jpg 240w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-819x1024.jpg 819w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-768x960.jpg 768w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-1229x1536.jpg 1229w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-1638x2048.jpg 1638w, https:\/\/autinteger.be\/wp-content\/uploads\/2024\/10\/mark-mcgregor-Ns8trMR4Om8-unsplash-1568x1960.jpg 1568w\" sizes=\"auto, (max-width: 2048px) 100vw, 2048px\" \/><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<p class=\"has-text-align-center has-large-font-size wp-block-paragraph\">&#8221; Participatory research means <em>\u201cincorporating the views of autistic people and their allies about what research gets done, how it is done and how it is implemented\u201d <\/em>(Fletcher-Watson <em>et al.<\/em>, 2019) &#8220;<\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-8f761849 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:100%\">\n<p class=\"has-text-align-center wp-block-paragraph\"><em>Hieronder vind je een selectie van een aantal wetenschappelijke artikels rond participatief autismeonderzoek, vrij toegankelijk voor iedereen (open access). Deze pagina is een dynamische pagina en besprekingen zullen regelmatig aangevuld worden.<\/em><\/p>\n<\/div>\n<\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Hens K and Van Goidsenhoven L (2023) Developmental diversity: Putting the development back into research about developmental conditions. Front. Psychiatry 13:986732. DOI: 10.3389\/fpsyt.2022.986732 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2024\/11\/Bespreking-Developmental-diversity-Putting-the-development-back-into-research-about-developmental-conditions.pdf\">Bespreking<\/a><\/strong> | <a href=\"https:\/\/www.frontiersin.org\/journals\/psychiatry\/articles\/10.3389\/fpsyt.2022.986732\/full\"><em>Download artikel<\/em><\/a><\/li>\n\n\n\n<li>Murray D, Milton D, Green J, Bervoets J. (2023) The Human Spectrum: A Phenomenological Enquiry within Neurodiversity. Psychopathology 56(3):220-230. doi: 10.1159\/000526213. Epub 2022 Sep 30. PMID: 36183692. <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2024\/11\/Bespreking-The-human-spectrum-a-phenomenological-enquiry-within-neurodiversity.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/karger.com\/psp\/article\/56\/3\/220\/841764\/The-Human-Spectrum-A-Phenomenological-Enquiry\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>den Houting J, Higgins J, Isaacs K, Mahony J and Pellicano E (2022) From ivory tower to inclusion: Stakeholders\u2019 experiences of community engagement in Australian autism research. <em>Front. Psychol. 13:876990.<\/em> <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2024\/11\/Bespreking-From-ivory-tower-to-inclusion.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychology\/articles\/10.3389\/fpsyg.2022.876990\/full\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Botha M and Cage E (2022) \u201cAutism research is in crisis\u201d: A mixed method study of researcher\u2019s constructions of autistic people and autism research. Front. Psychol. 13:1050897 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/02\/Bespreking-Autism-research-is-in-crisis-Botha-and-Cage.pdf\">Bespreking<\/a> <\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychology\/articles\/10.3389\/fpsyg.2022.1050897\/full\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Pellicano E, Lawson W, Hall G, Mahony J, Lilley R, Heyworth M, Clapham H, Yudell M (2022). \u2018\u2018I Knew She\u2019d Get It, and Get Me\u2019\u2019: Participants\u2019 Perspectives of a Participatory Autism Research Project. AUTISM IN ADULTHOOD. DOI: 10.1089\/aut.2021.0039 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/03\/Bespreking-I-Knew-Shed-Get-It-and-Get-Me-Participants-Perspectives-of-a-Participatory-Autism-Research-Project.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC9645671\/\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Pickard H, Pellicano E, den Houting J, Crane L (2022) Participatory autism research: early career and established researcher\u2019s views and experiences. Autism Vol.26(1) 75-87 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/03\/Bespreking-Participatory-autism-research-early-career-and-established-researchers-views-and-experciences-Pickard-et-al.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/13623613211019594\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Botha M (2021) Academic, activist, or advocate? Angry, entangled and emerging: a critical reflection&nbsp;on autism knowledge production. Front. Psychol. 12:727542 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/02\/Bespreking-Academic-Activist-or-Advocate-Monique-Botha.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychology\/articles\/10.3389\/fpsyg.2021.727542\/full\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Pearson A, Surtees A, Crompton CJ, Goodall C, Pillai D, Sedgewick F and Au-Yeung SK (2022) Editorial: Addressing community priorities in autism research. Front. Psychol. 13\/1040446 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/03\/Bespreking-Editorial-Addressing-community-priorities-in-autism-research.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychology\/articles\/10.3389\/fpsyg.2022.1040446\/full\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Bervoets J and Hens K (2020) Going beyond the catch-22 of autism diagnosis and research. The moral implications of (not) asking \u201cWhat is autism?<strong>\u201d.<\/strong> Front. Psychol. 11:529193 <strong><a href=\"https:\/\/autinteger.be\/wp-content\/uploads\/2025\/03\/Bespreking-Going-beyond-the-catch-22-of-autism-diagnosis-and-research-Bervoets-and-Hens.pdf\">Bespreking<\/a><\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychology\/articles\/10.3389\/fpsyg.2020.529193\/full\">Download artikel<\/a><\/em><\/li>\n\n\n\n<li>Bottema-Beutel K, Kapp SK, Sasson N, Gernsbacher MA, Natri H and Botha M (2023) Anti-ableism and scientific accuracy in autism research: a false dichotomy. Front. Psychiatry 14:1244451. doi: 10.3389\/fpsyt.2023.1244451  <strong>Bespreking<\/strong> | <em><a href=\"https:\/\/www.frontiersin.org\/journals\/psychiatry\/articles\/10.3389\/fpsyt.2023.1244451\/full\">Download artikel<\/a><\/em><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Hieronder vind je een selectie van een aantal wetenschappelijke artikels rond participatief autismeonderzoek, vrij toegankelijk voor iedereen (open access). Deze pagina is een dynamische pagina en besprekingen zullen regelmatig aangevuld worden.<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-197","page","type-page","status-publish","hentry","entry"],"_links":{"self":[{"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/pages\/197","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/comments?post=197"}],"version-history":[{"count":25,"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/pages\/197\/revisions"}],"predecessor-version":[{"id":385,"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/pages\/197\/revisions\/385"}],"wp:attachment":[{"href":"https:\/\/autinteger.be\/index.php\/wp-json\/wp\/v2\/media?parent=197"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}